I am 48 years old and on May 16th I was diagnosed with lymphoplasmacytic lymphoma (aka) Waldenstrom’s macroglobulinemia. I am head to the Moffit cancer center this week to find out what treatment we will be doing.
During my bone morrow biopsy (which hurt like a MFer) took around 8 minute, and came in stages. I found myself hearing Coach Chad’s voice in my head just like an interval getting me through the pain. Thanks Chad!
I am very pleased to have found this thread thank you to everyone for posting. It is an interesting barrel to be looking down, and when you find yourself in these situations you feel like you are the only person in history of man kind to go through, this a thread like this grounds you again. Thank you
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Hey brother, thanks for telling your story! I wish you the best of luck. Keep us abreast of your journey and your progress. It’s hard, and scary, I know. Training taught you to ensure hardship and tolerate discomfort. That helped me get thru it all.
Take care!
-Hugh
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Thanks Hugh. I just read your blog on finding out yours, I hope your doing well. We found out in office after the bone marrow biopsy.
Everyone turns in to Charlie Browns teachers voice (Wa Wah Wah Wa) at the point when you really should be able to hear.
It took a week and half to get over the hip drilling and get back on the trainer. Then it was only light. If I put to much pressure it hurt.
Thanks again
Shawn
Yeah, I was off the bike for a week after my biopsy. It was pretty sore, felt like back pain. Best of luck my man!
Got my PET scan done yesterday. Results came back clean! So, now we wait to start infusion therapy for the Waldenstrom’s Lymphoma.
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Yes! Glad it was clean! Go get 'em!
-Hugh
I went top 5 again yesterday in a great criterium. Blogpost up.
-Hugh
ex-prosays.blogspot.com
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Start Therapy tomorrow, 8 weeks once a week, then every 3 months for 2 years of Rituxan. Have any of you guys under gone Rituxan treatment?
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I did rituxan, and another drug, for 5 months. The first time was the hardest as it most likely will be for you. But itll get easier every time. Good luck with it, training has taught you to be uncomfortable and it’ll help you get through. I’m always here for you to listen or give what advice I can. Take care!
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Thank you
Yep, Rituxan/Rituximab - the nurses were very careful not to come in contact with it when administering it to me. And I think it came in a light-proof IV bag so it wouldn’t degrade.
Chemotherapy - poisoning yourself to kill something that will kill you. I was reminded of “Out of Africa” where the author told of taking arsenic to cure herself of syphilis. It turns out that this treatment is also chemotherapy.
If you are competing and prednisone/prednisolone is part of your treatment, note that the WADA prohibits its use during competion. It is highly unlikely that chemotherapy will make you faster. 
For me, the worst part of chemotherapy was being in isolation in a room without air conditioning for one session - a day and a half. It felt like it was at least 100 F. And the hospital’s millet porridge breakfast didn’t comply with their brochure about eating delicious foods during treatment. It was good that I was already taking drugs to prevent vomiting. 
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Thanh you. As of right now I am just on the Rituxan. No chemo. Had a 6 hour lesson on sitting yesterday. Just got up and feel pretty normal for now. Went for a walk last night in the heat, just felt bloated from all the excess fluids that were pumped in all day. thanks for your post. I hope you are well.
Shawn
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I finished my first 8 week of Rituxan! I have been getting on the trainer pretty reg. I was able to increase my FTP during my treatment. I am trying my best to stay on course with Sweet spot base low 1.
I have a six week reprieve from being a human pin cushion, and drug sponge. Here’s to hoping it works!
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Well done! I rode and lifted weights a little during treatment but I was so tired and so sick that, with 4 weeks to go, I all but stopped exercising.
Keep fighting and taking care of yourself. Get enough rest!
Super proud of you.
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How are you coming along man? I’ve been thinking about you.
-Hugh
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I have too
I had my Prostate removed some four years ago, Then two years ago I had 6 and a half weeks of radio therapy as my PSA tests revealed that a few cancerous cells were left behind. Its nothing in comparison to what some of you guys have been through.
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Good to hear you’re doing well 
The “C” words is never nothing! LOL! All good with you?
Hi yes I am all good, fortunately prostate cancer can be detected by a simple blood test. So I justget a three monthly test
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