Hey @InConstantPain99,
I think there are several of us in the UK here on the forum…I started having these symptoms over Xmas 2020…almost 3 years on, I have possibly learnt to live with it and sometimes also get on to my bike again but I am not the rider I used to be…I am now mostly riding an upright hardtail with thick tyres following kids on gravel paths…
I have tried 3 pain meds, 2 pelvic physios, been privately to 2 spinal surgeons and a hip surgeon to rule out any scalpel based interventions…I have also been to 2 TMS coaches, tried DCT, stretches from the headache in the pelvis book, read whatever has been written on the topic of chronic pain by Monty Lyman, Lorimer and Moseley, Alan Gordon…seen talks on YouTube by Schubiner and David Handscom
I even did all the stuff Stuart McGill wrote for DDD on the off chance that this may be something disc related…
I am still in pain but the intensity and disability is much much lower…
When I first got this, I kept thinking of this as an injury and tried desperately to heal often making things flare up and become worse…
Now I tend to think of this as the body demanding TLC…if I have taken a long haul flight or been sitting at work in front of a screen, the small flare up of symptoms is my body’s way of reminding me to back off a bit…
I also tend to think of this similar to wearing glasses …all (including me) needing correction to our eyes don’t consider this an injury or disability…we get glasses (a modification to get on with our life)…
I think a similar approach to these symptoms finally got me beyond catastrophising and scouring the internet for that silver bullet that eluded me for years or that elsuive expert who knows what no one else does about this condition…
I did breathwork, stress management, stretches, still use doughnut pillows, read about chronic pain science, buy saddles with cutouts…use pain meds ( antidepressants) when symptoms are flaring.
For me, it is a problem that needs a combination of interventions to see what works at that point in time to enable me to get on with life, family and all other things that are important and provide joy and meaning…
Life is too short to spend it searching for fix…the fix is to modify lifestyle to get on with life…
Hope my tuppence helps… apologies to anyone who vehemently disagrees with this but these are my opinions formed from my personal experience and this is not advice given in any capacity…