My wife, 61, has been an avid road cyclist for 12 years, and was just diagnosed by MRI with a perineal nodular induration (PNI), also known as cyclist nodule. We want to be sure she gets the best possible medical care to assure she can continue cycling. This is apparently a rare condition, especially for women; and we need her to be evaluated by a doctor experienced with PNI. So far, we have not been able to find one. We live in south Orange County in California, but are willing to travel to assure her the best possible care. It seems a tele-med call may also work, so an experienced PNI doctor can be located anywhere. Thank you so much for any helpful information you can provide. Please feel free to pass this post along to anyone you think may be able to help.
Neal
Hello Neal. I have also been diagnosed with PNI (cyclist hydroma). I am mid fifties and would like to find a surgeon (feel like that might be the best route to berid this thing!), Did you end up finding one. I am in Boulder county Colorado and unable to find someone. It is rare as you say. Would love to hear where you are at with it now? Thanks!
This Case Report has an author from the Department of Orthopedic Surgery, Division of Sports Medicine, University of California San Diego and one from the Dartmouth Geisel School of Medicine in New Hampshire. Reach out to them? Maybe they’d know someone closer.
Thanks for the quick reply. I have definitely read any/all articles including this but didn’t think to reach out to the authors. I might give that a go. Thanks again. Mainly just trying to determine what type of surgeon I need.